Session Thirty-Five: January is Birth Defect Awareness Month

9 Jan 2026 09:29

Our daughter, affectionately called Miracle Mayah was born with a rare form of dwarfism called Campomelic Dysplasia. It carries with it a frighteningly long list of birth defects. We were informed very early in our pregnancy following an anatomy scan that our daughter had markers for chromosomal abnormalities. As the weeks continued, additional scans confirmed our daughter had an unknown condition causing clubfeet, bowing legs, shortened limbs, small chin, and probable airway obstruction. A lot of terrifying information was presented to us. More frightening than any of the medical terms being thrown at us was the prognosis the sonographer pronounced over our unborn daughter: She wouldn't be able to survive outside of my womb. They had to be wrong! This wasn't happening to us.

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Session Thirty-Four: It's a New Year!

4 Jan 2026 08:53

In the wild world of parenting a child with a tracheostomy, the word "new" can be a bit intimidating. For most people who find themselves on this path, everything about trach life is new. Your whole world changes. You're no longer a mom; you're a special needs mom, and I can assure you that you don't feel special. More often than not, you feel alone. You feel like no one understands the drastic change you're experiencing in this new life. 

Read more »

Session Thirty-Three: Salute to Farmers

12 Nov 2025 10:01

We just had our first snow of the season here in Ohio, a bit earlier than expected seeing as the leaves are still clinging to the trees. Thankfully, our crops are already harvested, and the wheat has been sown. Perhaps you didn't know we are a farming family, I don't recall ever writing about it as we've shared our Travels with Our Trachie...but our girl has most certainly traveled some bumpy miles sitting in the buddy seat of a tractor! In fact, the night our trachie was born, her Daddy had just kicked his feet up in the recliner after a long day of combining during soybean harvest when Mommy's water broke sending the house into a panic! Our girl was even born on the night of a rare Harvest Moon total eclipse. 

Read more »

Session Thirty-Five: January is Birth Defect Awareness Month

9 Jan 2026 09:29

Our daughter, affectionately called Miracle Mayah was born with a rare form of dwarfism called Campomelic Dysplasia. It carries with it a frighteningly long list of birth defects. We were informed very early in our pregnancy following an anatomy scan that our daughter had markers for chromosomal abnormalities. As the weeks continued, additional scans confirmed our daughter had an unknown condition causing clubfeet, bowing legs, shortened limbs, small chin, and probable airway obstruction. A lot of terrifying information was presented to us. More frightening than any of the medical terms being thrown at us was the prognosis the sonographer pronounced over our unborn daughter: She wouldn't be able to survive outside of my womb. They had to be wrong! This wasn't happening to us.

Read more »

Session Thirty-Four: It's a New Year!

4 Jan 2026 08:53

In the wild world of parenting a child with a tracheostomy, the word "new" can be a bit intimidating. For most people who find themselves on this path, everything about trach life is new. Your whole world changes. You're no longer a mom; you're a special needs mom, and I can assure you that you don't feel special. More often than not, you feel alone. You feel like no one understands the drastic change you're experiencing in this new life. 

Read more »

Session Thirty-Three: Salute to Farmers

12 Nov 2025 10:01

We just had our first snow of the season here in Ohio, a bit earlier than expected seeing as the leaves are still clinging to the trees. Thankfully, our crops are already harvested, and the wheat has been sown. Perhaps you didn't know we are a farming family, I don't recall ever writing about it as we've shared our Travels with Our Trachie...but our girl has most certainly traveled some bumpy miles sitting in the buddy seat of a tractor! In fact, the night our trachie was born, her Daddy had just kicked his feet up in the recliner after a long day of combining during soybean harvest when Mommy's water broke sending the house into a panic! Our girl was even born on the night of a rare Harvest Moon total eclipse. 

Read more »

Session Thirty-Five: January is Birth Defect Awareness Month

9 Jan 2026 09:29

Our daughter, affectionately called Miracle Mayah was born with a rare form of dwarfism called Campomelic Dysplasia. It carries with it a frighteningly long list of birth defects. We were informed very early in our pregnancy following an anatomy scan that our daughter had markers for chromosomal abnormalities. As the weeks continued, additional scans confirmed our daughter had an unknown condition causing clubfeet, bowing legs, shortened limbs, small chin, and probable airway obstruction. A lot of terrifying information was presented to us. More frightening than any of the medical terms being thrown at us was the prognosis the sonographer pronounced over our unborn daughter: She wouldn't be able to survive outside of my womb. They had to be wrong! This wasn't happening to us.

Read more »

Session Thirty-Four: It's a New Year!

4 Jan 2026 08:53

In the wild world of parenting a child with a tracheostomy, the word "new" can be a bit intimidating. For most people who find themselves on this path, everything about trach life is new. Your whole world changes. You're no longer a mom; you're a special needs mom, and I can assure you that you don't feel special. More often than not, you feel alone. You feel like no one understands the drastic change you're experiencing in this new life. 

Read more »

Session Thirty-Three: Salute to Farmers

12 Nov 2025 10:01

We just had our first snow of the season here in Ohio, a bit earlier than expected seeing as the leaves are still clinging to the trees. Thankfully, our crops are already harvested, and the wheat has been sown. Perhaps you didn't know we are a farming family, I don't recall ever writing about it as we've shared our Travels with Our Trachie...but our girl has most certainly traveled some bumpy miles sitting in the buddy seat of a tractor! In fact, the night our trachie was born, her Daddy had just kicked his feet up in the recliner after a long day of combining during soybean harvest when Mommy's water broke sending the house into a panic! Our girl was even born on the night of a rare Harvest Moon total eclipse. 

Read more »