Welcome to Travels with Our Trachie blog!

Come along for the ride as we navigate this wide world with our medically fragile daughter. Our Miracle Mayah was born in 2015 with a rare form of dwarfism called acampomelic dysplasia. During the pregnancy, our child was given no chance of survival. She has been defying the odds from before day one. 

 

Our journey has been full of peeks and valleys, dark days and days of indescribable joy. Having a front row seat to her miraculous life has been a tremendous gift. Mayah's joy in the face of so many obstacles inspires us and has put life into perspective. We decided during the pregnancy that we would share our daughter with the world and celebrate every day of her life, a life that science says should have ended within minutes of her birth. 

 

Though sharing her story has come with some challenges, we are thrilled to be a part of this beautiful story. We pray that the light that radiates from her face will touch many hearts and bring glory to God. 

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