Session 9: 'Tis the Season
Our daughter had reached a magnificent milestone, she was now two years old. Not an accomplishment typically recognized by parents, however, with our daughter, it was of tremendous importance. You see, the limited medical information available for our daughter’s rare form of dwarfism stated that a high percentage die in infancy due to severe respiratory distress. Now that our girl had entered the world of toddlerhood, she had survived infancy and defied yet another terrible prognosis. (While pregnant, a diagnostic sonographer gave us no chance of survival after birth.)
Even though she was two, our girl’s gross motor skills were still those of an infant. However, she ended the year with some exciting new skills! Our daughter began to crawl and pulled herself to standing for the first time. We were elated! Though they were delayed, our girl was reaching those important milestones.
We embraced the holiday season with more excitement now that our daughter was becoming more mobile and interacting with the world on a new level. For the first two years of her life, she could only lay on her back or sit in a supportive bouncie chair. It was heartwarming to see her crawl toward her cousins and attempt to play. She was no longer the sick baby with all the medical equipment lying in a corner of the room. Unfortunately, she still had all the medical equipment, which meant Mommy or Daddy had to carry the ventilator behind her as she crawled, but we were happy to oblige. Our girl was finally doing her own traveling!
That year for New Year’s Eve, we took our girl along for her first overnight stay in a hotel as we attended the wedding of a dear friend at our state’s capital city. We couldn’t believe she stayed awake until midnight! In our eyes, she was the Belle of the ball, and we couldn’t be happier to be ringing in the New Year and its boundless opportunities with our smiling girl.
We had all grown so much in those two years and we were filled with joyful anticipation for the adventures that lie ahead as we travel with our trachie.
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